Randy Rogers Remembers Newborn Daughter Two Weeks After Her Death
Two weeks after he lost his baby girl, country singer Randy Rogers is speaking out about her death. Rumer Rain Rogers died of nonketotic hyperglycinemia on June 10, just six days after she was born in Austin, Texas.
NKH is a rare genetic disorder with no cure that disrupts functions of the brain and can lead to symptoms including seizures, learning difficulties, lethargy and breathing difficulties. "They started running test after test and nothing was wrong with her," Rogers told People. "It was a six-day process. It was heart-wrenching and grueling not knowing what was wrong. She was put on a feeding tube pretty early on because she couldn't eat or swallow, then she decided to stop breathing and we had to put her on a vent."
Following their heartbreaking loss, Randy and his wife, Chelsea, have teamed up with Seton Medical Center Austin to provide funds for families of babies in neonatal intensive care units. They also told People they plan on having more children.
"We'll just have to do in vitro fertilization," Rogers said. "There will need to be genetic screening and genetic testing done before the implantation of the fertilized egg. It's given us a lot of joy and hope knowing that it is possible for us to do this; it's just going to have to be a different route than the traditional one."